Articles Tagged With: Privacy
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Many Ethical Considerations for MDs if Patient Is Unvaccinated
Beyond the ethical questions, there are logistics, privacy, and even equity concerns to consider. -
OCR Seeking Ways to Improve HIPAA, Respond to Value Concerns
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‘It’s a No-Man’s Land’: The Pitfalls of Genetic Data-Sharing and Informed Consent
It is unclear how well participants really understand all the potential risks of sharing their DNA. Researchers are ethically obligated to be sure that what they are asking people to consent to is just, fair, appropriate, and respectful of human rights.
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Privacy Remains Central Problem with Genomic Data-Sharing
Making the system more trustworthy requires greater transparency, clear principles of accountability, and more comprehensive laws and regulations that protect against discriminatory uses of genetic information. The results of a recent survey may reveal the work ahead.
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Privacy Concerns with Telehealth Should Prompt Review
With the use of telehealth increasing in response to the COVID-19 pandemic, there is growing concern the technology may pose risks to patient privacy. In particular, any telehealth services quickly established at the beginning of the pandemic may need a close review to ensure they do not result in data breaches.
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Consider Telehealth Privacy Concerns
Technology that was not developed specifically for telehealth still can be used safely, but some caution is warranted. Providers must make a good faith effort to protect the privacy of the patient when using telehealth.
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Combining Large Data Sets Challenges IRBs, Researchers to Ensure Privacy
The problems with HIPAA and current methods of protecting the privacy of individuals in research are being challenged in ways that were not possible in previous decades due to the ease and use of big data. Data scientists and other savvy investigators can combine de-identified data in a way that makes cross-references and re-identification possible.
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Mobile Technology, Wearables Are Changing Research, Challenging IRBs
Mobile technology and wearable sensors are broadening the limits of research and changing how IRBs view privacy. The voluminous data can point to health strategies previously unimaginable.
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Big Data Are Changing How IRBs Think About Research
Researchers and sponsors are adapting quickly to virtual technologies and using big data in studies, forcing IRBs and research protection programs to adapt — particularly when it comes to privacy. When IRBs review studies that use big data, they need to be reviewed through the lens of ethical review.
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Common Misconceptions About HIPAA Can Threaten Patient Safety, Quality of Care
Misconceptions about the Health Insurance Portability and Accountability Act continue despite years of education. Some wrong interpretations can jeopardize patient safety.