CM primer: Look here for PPS resources
The medical literature is full of articles on post-polio syndrome (PPS). Yet, many physicians are unfamiliar with PPS symptoms and treatment. Case managers working with PPS patients may want to have the following resources on hand to help increase physician awareness of this debilitating condition:
• Gawne AC, Halstead LS. Post-polio syndrome: Pathophysiology and clinical management. Critical Reviews in Physical and Rehabilitation Medicine 1995; 7:147-188.
• Strebel PM, Sutter RW, Cochi SL, et al. Epidemiology of poliomyelitis in the United States one decade after the last reported case of indigenous wild virus associated disease. Clin Infect Disease 1992; 14:568-579.
• Dalkas MC. Morphological changes in the muscles of patients with post-poliomyelitis neuromuscular symptoms. Neurology 1988; 38: 99-104.
• Weichers DO. Pathophysiology and late changes in the motor unit as revealed by electromyography. Orthopedics 1986; 8:870-872.
• Grimby G, Einarsson G, Hedberg M, Anianson A. Muscle adaptive changes in post-polio subjects. Scand Rehabil Med 1989; 21:19-26.
• Halstead LS, Rossi CD. New problems in old polio patients: Results of a survey of 539 polio survivors. Orthopedics 1985; 8:845-850.
• Trojan DA, Cashman NR, Shapiro S, et al. Predictive factors for post-poliomyelitis syndrome. Arch Phys Med Rehabil 1994: 75:770-777.
• Halstead LS. Assessment and differential diagnosis for post-polio syndrome. Orthopedics 1991; 14:1,209-1,217.
• Young GR. Occupational therapy and the post-polio syndrome. Am J Occup Therap 1989; 43:97-103.
• Gawne AC, Yiliz EO, Halstead LS. Pain syndromes in 40 consecutive post-polio patients: A new evaluation tool. Arch Phys Med Rehabil 1993; 74.
• Bach JR, Alba AS, Shin D. Management alternatives for post-polio respiratory insufficiency: assisted ventilation by nasal or oral nasal interface. Am J Phys Med Rehabil 1989; 68: 264-271.
• Sonies BC, Dalakas MC. Dysphagia in patients with the post-polio syndrome. N Engl J Med 1991; 72:1,071-1,075.
Worth further attention
The International Polio Network in St. Louis publishes several consumer brochures on post-polio syndrome, including The Late Effects of Polio: An Overview. In addition, the following resources are available:
• Handbook on the Late Effects of Poliomyelitis for Physicians and Survivors. This guide covers basic information about the late effects of polio. The cost is $6.75 postpaid.
• Polio Network News. This quarterly newsletter keeps polio survivors informed about issues related to polio and its late effects. The cost is $16 annually in the United States and $21 annually in Canada. A sample copy is available on request.
• Post-Polio Directory. This directory includes a listing of PPS clinics, health professionals, and self-help groups. It is published each year in March. The cost is $4.
To order any of the above resources, contact: International Polio Network, 4207 Lindell Blvd., #110, St. Louis, MO 63108-2915. Telephone: (314)534-0475. Fax: (314) 534-5070. E-mail: [email protected].
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