TBI resources for CMs and survivors
Both the national office of the Brain Injury Association (BIA) in Alexandria, VA, and the national office of the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) in Arlington, VA, have extensive catalogs of useful resources for both case managers and consumers.
The following resources are available from BIA. To order, contact BIA, 105 N. Alfred St., Alexandria, VA 22314. Telephone: (703) 236-6000. Fax: (703) 236-6001. Web site: www.biausa.org.
• The TBI Tool Kit. Item No. 2TKTB. Cost: $24.95. This 212-page manual includes a comprehensive list of federal and state resources and how to qualify for them. Also, the manual provides the framework for gathering the information needed to complete the application process required by various agencies. It also discusses how to appeal, if you are denied funds. The manual appendix lists contact names, addresses, and telephone numbers of federal and state agencies, advocacy groups, and assistance organizations.
• Life Care Planning and Case Management Handbook. Item No. 4LCPH. Cost: $89.95. This 528-page book addresses the medical, economic, and legal issues for a variety of conditions, including brain and spinal cord injuries. The book includes case examples and checklists.
• Life Care Planning for the Brain Damaged Baby. Item No. 4LCPB. Cost: $22.95. This 140-page manual provides a step-by-step approach to developing a comprehensive life care plan for the baby with brain injury. The material contains two complete sample life care plans and numerous checklists, charts, graphs, reproducible forms, and references to relevant readings.
• Independent Living and Brain Injury. Item No. 2ILBI. Cost: $11.50. This 78-page text focuses on making services provided by government agencies or centers available to persons with brain injury through existing providers.
• Coming Home: A Discharge Manual for Families of Persons with a Brain Injury. Item No. 2F01B. Cost: $12.50. This 70-page manual identifies and provides examples of common behavioral changes and offers practical strategies for dealing with problem areas. The manual provides ongoing advice for family members of brain injury survivors.
• Community Living Skills Workbook for the Head Injured Adult. Item No. 1COML. Cost: $104. This 384-page book is a comprehensive resource for clinicians that provides treatment activities addressing the specific needs common to many persons with head injuries. The book includes functional activities for treatment within the environment to which the injured person will return. It includes reproducible forms and hand-outs.
• Community Success. Item No. 2COMS. Cost: $49. This 1,777-page activity book illustrates 60 common activities such as crossing streets, using restrooms, and shopping in a step-by-step manner. Corresponding social skills are integrated into each activity. The material and illustrations follow a three-step process: review, rehearse, and perform. The pages can be photocopied for individual use. It includes easy-to-use reports for measuring a patient’s progress.
• When Your Child Goes to School After an Injury. Item No. 1AFTR. Cost: $9.50. This 72-page book is a resource guide for parents, teachers, and caregivers. The guide offers practical suggestions for enhancing a child’s successful return to school after an injury.
• When Young Children are Injured: Families as Caregivers in Hospitals and at Home. Item No. 1YNGC. Cost: $9. This 49-page book offers families practical advice for choices and decisions that will help them adjust and prepare for the future.
The following resources are available from RESNA. To order, contact RESNA, 1700 N. Moore St., Suite 154, Arlington, VA 22209-1903. Telephone: (703) 524-6686. Fax: (703) 524-6630. E-mail: [email protected]. Web site: www.resna.org.
• Pediatric Powered Mobility. Cost: $20. This 94-page book provides current philosophies, research, and resource information for individuals seeking to provide powered mobility to children.
• RESNA Resource Guide for Assistive Technology. Cost: $30. This three-volume set provides detailed information on measurement for assistive technology, assessment instruments, tools, and outcomes measurement.
• Alternative Computer Access: A Guide to Selection. Cost: $30. This 280-page book is a guide to selecting computers for individuals with physical, cognitive, or sensory disabilities. The book describes computer access features and solutions and offers information on a range of equipment and products.
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