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More than one-third of American medical students are not required to study medical ethics, according to survey results compiled by the American Medical Student Association (AMSA).
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Recent revelations that hundreds of HIV-positive foster children may have been signed up for clinical trials without advocates assigned to ensure their safety have stirred the latest controversy regarding pediatric clinical research.
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The largest study yet of public fears about genetic discrimination found that 40% of people undergoing testing for a particular genetic disease were concerned that their participation could affect future access to insurance.
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The new public outreach campaign by the OHRP is a much-needed step in the right direction, say many clinical researchers. But the campaigns centerpiece an educational pamphlet designed to answer basic questions about research participation is leaving nonclinical researchers feeling left out in the cold.
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Last year, South Korean researcherWoo Suk Hwang and colleagues at Seoul National University stunned the world with news first published in Science on-line that they had developed stem cells from a cloned human embryo, using somatic-cell nuclear transfer.
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When an IRB reviews a proposal to pay research participants, members often have little more guidance to go on than their own gut feeling of what is appropriate and what is too much.
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Many people willing to participate in clinical research trials never do because they simply dont know about them or misunderstand the obligations involved, says a leading expert on supporting public research participation.
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A survey of patients who had suffered strokes found that most would be willing to participate in emergency research for stroke treatments, and if incapacitated, would accept surrogate decisions about enrollment by family members or even their doctors.
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Clinical trials that show a treatment effect early on face a dilemma. If the effect is real, one ethical argument goes, then it is imperative to give all involved access to the drug as quickly as possible, starting with the placebo group.
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Is it ethical to enroll an elderly person with Alzheimers disease in a new research study, even if he or she doesnt really understand what it entails? What if the research has real risks, is unlikely to benefit the patient, but could lead to advances that will help future patients with Alzheimers?
